2019 NCATS Day DRAFT agenda

December 17, 2019

Natcher Conference Center, Room E1/E2

NCATS Day 2019: Conversations on Responsible Sharing of Data
8:30 a.m.–9:45 a.m.
 
Room E1/E2
Welcome Chris Austin, Director, National Center for Advancing Translational Sciences (NCATS)
8:45 a.m.–9:30 a.m.
 
Room E1/E2
 
Interview (30 min + 15-minute Q&A)
An Interview: NCATS and Translational Science Introduction: Penny Burgoon, NCATS
 
Interviewer: Christina Hartman, Senior Director of Advocacy, The Assistance Fund Interviewee: Dr. Austin
9:30 a.m.–9:45 a.m. Break  
10:00 a.m.–12:00 p.m.
 
Room E1/E2
Panel Discussion: Exchanging Perspectives on Responsible Sharing Discussion of approaches and perspectives associated with the sharing of data.
 
Case studies will be introduced and discussed by a panel.
Perspectives to include:
Community members
Patient groups
Researchers
Funders
12:00 p.m.–1:00 p.m. Lunch (on your own)  
1:00 p.m.–2:30 p.m.
 
Room TBD
Breakout Discussions A deeper discussion of the morning’s case studies for additional perspectives on data usage and sharing.
2:30 p.m.–3:30 p.m.
 
Lobby area outside of Room E1/E2
Networking Session  
3:30 p.m.–4:30 p.m.
 
Room E1/E2
Summary and Closing Remarks Summarize the day’s activities
 
Highlights from the focus group session Closing remarks
 
Dr. Austin